7:30 am – The last few appointments are being finished up today – I’m hoping to be able to pick Miriam and Emma up tomorrow!
Unless something else comes up, we should be home this weekend. We do have another appointment next Thursday, and more into January (including another MRI), but hopefullly those will alll be day trips 🙂
7:15 pm – The doctor is now saying he wants to observe Emma for another three to four days, and then she can come home so long as everything is looking good. There’s one more lung test that they’re going to do, probably tomorrow.
A hearing doctor did confirm today that Emma has virtually no hearing in one ear, so they’ll try to schedule a more thorough test at the same time as her MRI in January.
Please continue praying her lungs would continue to heal and she would be able to come home soon!
6:00 pm – The results of the chromosome test have come back negative. Originally the geneticist said that indicated only that she would need another test. But maybe she’s doing well enough that they’ll cancel that – we don’t know at this point.
A new doctor is now wanting her to stay for more tests related to her lungs. Miriam and I are both happy with the explanations and precautions already in place, and we really want everybody home. Please pray that the hospital will be willing to let Emma and Miriam come home in time for Christmas!
Emma is doing well, acting happy and alert. She isn’t eating very well yet – the three weeks on the ventilator with no feeding by mouth has messed her reflexes and muscles up a bit.
5:30 pm – I just arrived back from the hospital where I saw Emma and dropped Miriam off to stay with her. Emma is looking great! She’s still very sleepy because they are gradually weaning her off all the sedations, but she looks much more comfortable and happy.
She should have moved from PICU to the general CV ward this afternoon. She’ll remain there for a few days for observation and preparation to come home! Pictures below:
11:30 am – Emma is coming off the ventilators now! The hospital just called. Wow! We’ve been hoping for this for so long, it didn’t seem like it was ever going to happen!
So, change of plans, we’ll be heading back down to Little Rock tomorrow morning. Emma will stay in PICU for at least 24 hours, then maybe a while longer in a general pediatric room. We don’t know exactly when she’ll be able to come home, but it should be soon!
5:30 pm – She is off the ventilator and doing fine. Sounds like she’ll be able to come home mid to late next week. I’m taking Miriam down to stay in Little Rock tomorrow morning. She’ll stay with Emma until it’s time for me to come back and pick them both up!
4:00 pm – Miriam called the hospital this afternoon. The nurse said that Emma is doing really well. They turned the ventilator “way down” and lowered another pressure number, and the oxygen levels in her blood stayed where they’re supposed to. So that’s good progress!
7:00 pm – Just a note to let you know that Miriam and I have returned home for a few days to spend some time with Elise (who is THRILLED to home again!). Emma seems to be improving VERY slowly, so while she’s stable but mostly sleeping we thought we’d both come home for a little bit. At this point I’m planning on driving her back after church on Sunday (we’ve each been to church once in the last few months, and seperately at that) unless we get a call from the hospital.